S A I L Self Advocacy Independence & Leadership Training


For children of the bleeding disorders community ages 13-18 and accompanying parent / guardian
Date: September 14-16, 2018
Venue: Camp Quinipet, Shelter Island, NY
The focus of this training is on:
Self Advocacy – “Who am I?” “What is my story?” “How can I best express my issues and needs?”
Independence – As teens move from childhood to early adulthood they would benefit from enhancing their skill sets required for independence. Preparing for college, work, internships, managing finances, managing their health.
Leadership – Specific exercises in leadership will build confidence and better decision making for this cohort.
For more information or to register:
Contact Tyshawn Constantine: 212-682-5510 tconstantine@hemophiliany.com


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The Hemophilia Federation of America Young Adult Program Is Booming! By offering additional resources and education about the benefits of self-care and exercise for young adults. Select link for more information:








"Patient Puppet"

We donated "Patient Puppets" to the Hemophilia Treatment Center in Long Island Jewish Medical Center. The patient puppet, has a port, a PIC line, a bruise site, and a Hemophiliac knee joint, to educate and demonstrate to kids about Hemophilia.




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